Our vibrant city of Potchefstroom is set to host a remarkable event this Thursday, 29th February 2024, at Mooirivier Mall on Nelson Mandela Drive. This year’s Rare Disease Day observance is not just an event but a movement towards spreading awareness and understanding for those living with rare diseases. With an open invitation to the public, the organizers aim to create a day filled with activities that celebrate diversity, solidarity, and hope.
Event Overview
Rare Disease Day is a globally recognized event dedicated to raising public awareness about rare diseases and their impact on patients' lives. Since its inception in 2008, the day has served as a platform for the rare disease community to unite and share their experiences, advocating for better healthcare, access to treatments, and social opportunities.
Activities and Participation
Donate Blood: Every Drop Counts
In the spirit of giving and support, attendees are encouraged to participate in a blood donation drive. This vital act of kindness can make a significant difference in the lives of those affected by rare diseases, many of whom require frequent transfusions as part of their treatment.
Share Your Colours: A Visual Celebration
Participants are invited to express their support and solidarity by sharing their colors at the event’s color booth. This initiative encourages individuals to snap a photo showcasing their vibrant spirits and share it on social media, flooding the digital world with a wave of positivity and awareness for the rare disease community.
Why It Matters
Rare Disease Day goes beyond a single day of the year; it's a lifeline that connects individuals, families, and healthcare professionals in a shared mission to bring light to the challenges faced by the rare disease community. It highlights the importance of social support, accessible healthcare, and the need for ongoing research and development of treatments.
Join the Movement
Whether you’re an individual, a school, a healthcare professional, or a corporate partner, your presence and participation can contribute to a larger wave of change and understanding.
Venue: Mooirivier Mall, Nelson Mandela Dr, Potchefstroom, 2531, South Africa
Date: Thursday, 29th February 2024
For more information, please visit the official website or follow the event on Facebook at National Metabolomics Platform. You can also reach out via telephone at 018-299-2312 or email at pliem@nwu.ac.za.
Rare Disease Day in Potchefstroom is more than just an event; it’s a beacon of hope and a call to action for everyone to show their support and understanding for those living with rare diseases. By participating, donating blood, or simply sharing your color, you contribute to a brighter, more inclusive future for all. Join us in making this Rare Disease Day a memorable and impactful celebration.
